Ethan's story

Ethan received a heart transplant aged one in the summer of 2020.

After waiting in hospital on a Berlin heart since October, Ethan received his heart transplant this summer.

Ethan’s mum said: “The waiting was a very hard time for us.  We didn’t know if it would happen with coronavirus happening but just before it did Ethan was deteriorating. 

“He received his call over the summer, a day we will never forget.  It was a huge shock, I was very emotional as all I kept thinking about was that a poor child had lost their life and for their parents it must have been the hardest decision for them.

“We calmed ourselves and drove to hospital. A few hours later he was down in theatre and after 7 hours we were able to see him.  To see Ethan for the first time without the noise of the berlin heart, without avoiding tripping over the wires, without a nurse checking it for clots with a flashlight took a while. Being able to pick him up and just walk without thinking where’s the nearest plug point, which nurse is available, words cannot even begin to describe how amazing that was.

“Ethan’s recovery has been amazing, within days he was on a ward and back into his old routine. Then we took him home and he has clinic every two weeks now.

“His eating has improved massively! He is now in a walker and runs everywhere in it.  We are just so grateful he is here and when he is ready, he will just get up and “go go go” as he says.

I constantly think about Ethan’s donor and their family. Look at him today and you will see Ethan, and his father who has also had a heart transplant, are living proof of what organ donation can do.
Roselelia, Ethan's mum

“You aren’t just giving them back their life but their mother, father, sisters, grandparents, aunts, uncles, cousins, friends and everyone else who it impacts, it’s a happy ending from absolute sorrow.

“You don’t need to sign up, just talk about it today then in the eventuality it happens, you know what their/your wishes were and it helps should they or you have to make that decision.”

Every day across the UK, someone dies waiting for an organ transplant.

The law around organ donation in England has changed to help more people pass on more organs to save and improve more lives like Michelle’s.

You still have a choice about whether or not you wish to become a donor.

Whatever you decide, make sure you let your family and friends know.

Have you recorded your organ donation decision?

Make your choice