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Talk about organ donation and help to save lives this Inter Faith Week

12 November 2018

This Inter Faith Week (11-18 November)1 NHS Blood and Transplant is encouraging people across the different faiths to help dispel myths and misconceptions by talking about organ donation.

Research carried out on behalf of NHS Blood and Transplant has found that the main barrier to organ donation among black and Asian people is the belief that it is against a person’s culture or religion2. However, all the major religions in the UK support organ donation and transplantation.

During Inter Faith Week, NHS Blood and Transplant is urging faith organisations, faith leaders and individuals to discuss organ donation both within their faith communities and on social media using the hashtags #InterFaithWeek and #YesIDonate.

The aim is to increase understanding of organ donation and the stances of different faiths as well as be an opportunity for people to publicly show their support for donation.

Anthony Clarkson, NHS Blood and Transplant Interim Director for Organ Donation and Transplantation, said: “Organ donation is supported by all the major religions in the UK, but we understand that a person’s faith or beliefs can play a role in their decision whether or not to donate their organs.

“NHS Blood and Transplant is committed to working with faith leaders and groups, particularly in black, Asian and ethnic minority communities, to build awareness and break down perceived barriers.

“Please show your support for organ donation this Inter Faith Week. Talk to others within your own and in other faith communities and join the discussion on social media.

“It is also an ideal time to talk to your family about organ donation. Tell them you want to be a donor and find out what they want too. By having these conversations we can ensure that more lives are saved through people donating their organs to help someone else in need.”

When approaching the families of potential donors, NHS Blood and Transplant’s specialist nurses in organ donation work very hard to understand what was important to the individual and whether their family needs any additional support in their decision making around organ donation.

To support this, NHS Blood and Transplant is currently working with the major religions and belief systems in the UK to develop a faith/beliefs declaration. The declaration will allow people joining the register or updating their record via organdonation.nhs.uk or the NHS app, to state they would like NHS staff to speak to their family and anyone else appropriate about how organ donation can go ahead in with their faith or beliefs.

Bimla Parmar from Hayes became a lifesaving organ donor when she died of a brain haemorrhage aged 68. After collapsing at home, Bimla was transferred to hospital where brain scans confirmed she would not recover. Bimla’s family, who are Sikh with an Indian background, were approached about donation by a specialist nurse from NHS Blood and Transplant.

Her daughter Gurpreet Parmar, 39, who lived with her in Hayes, says:

“My mum was not on the NHS Organ Donor Register but my siblings and I were fine with it as we believed someone else should be helped by our loss. I personally had registered to be a donor a long time ago as I want to help someone else once I am gone. Mum was religious and loved by everyone. Happy, with a beautiful soul. She was able to donate her lungs, kidneys and liver to four people aged in their 50s and 60s.”

Last year, 42% of Black and Asian families agreed to donate their relative’s organs, compared to 66% of families from the overall population. The Parmar family are aware of the need for more Asian donors.

Gurpreet, says: “I hope more of my generation and younger educate the elders to sign up to donate and explain what their gift can mean to a family seeing their loved one struggle on a daily basis. I do hope my story will make more Asians sign up to donate!”

NHS Blood and Transplant has recently made a call for applications for funding from organisations to enable them to run projects to promote organ donation within black, Asian and minority ethnic communities and these applications are currently being assessed. The funding has been made available under a new Government campaign led by NHS Blood and Transplant to address the urgent shortage of organ donors from these backgrounds.

Jackie Doyle Price, Minister for Mental Health, Inequalities and Suicide Prevention, says:

“To donate is to give someone the gift of life. If you are black or Asian, you are more likely to need a life-saving transplant, but you will have to wait on average half a year longer for a donor match.

“Unfortunately, myths have hindered organ donation in black or Asian communities. This Inter Faith Week I encourage religious leaders in these communities to help spread awareness and understanding of donation so we can save more lives.”  

Information about organ donation and individual faiths is available on the Organ Donation website.

A range of downloadable resources are available on the Inter Faith Website.

 

Ends

For additional information, or to request interviews with case studies or spokespeople please call Suzi Browne at the NHSBT Press Office on 01923 367600 or email pressoffice@nhsbt.nhs.uk. For out of hours enquiries please call: 0117 969 2444

Notes to editors

  1. Inter Faith Week aims to strengthen inter faith relations, increase awareness of the different faith communities in the UK and increase understanding between people of religious and non-religious beliefs.
  2. A face-to-face survey to measure attitudes towards organ donation was carried out among 1,034 adults aged 18+ from black and Asian backgrounds during May 2018. The sample was balanced by age, gender and broad geographic region. 27% said they thought organ donation was against their culture or religion

 

About NHS Blood and Transplant

NHS Blood and Transplant is a joint England and Wales Special Health Authority. We provide the blood donation service for England and the organ donation service for the UK. We also provide donated tissues, stem cells and cord blood. We are an essential part of the NHS, saving and improving lives through public donation.

Organ donation

  • It is quick and easy to join the NHS Organ Donor Register. Call 0300 123 23 23 or visit organdonation.nhs.uk
  • Families are always involved in organ donation discussions. You can make things easier for your family by telling them you want to donate.
  • Every day across the UK around three people who could have benefited from a transplant die because there aren’t enough organ donors.
  • Anyone can join the NHS Organ Donor Register, age and medical conditions are not necessarily a barrier to donation.
  • One donor can save or transform up to nine lives through organ donation and save and transforms even more by donating tissue.
  • The Government has announced plans for a presumed consent system of organ donation to take effect from spring 2020. Under the system, you would be a donor unless you register a decision not to donate. Families will still be able to object to donation so it’s important that you make their decision easier at a difficult time by also telling them that you want to donate.

Blood donation

  • It is quick and easy to book an appointment to give blood. Call 0300 123 23 23 or visit blood.co.uk
  • NHS Blood and Transplant needs to collect 1.4 million units of blood each year to meet the needs of patients across England.
  • There are four main blood groups – O, A, B and AB. O negative (the universal blood group) and B negative are particularly vulnerable to shortfalls. So, we want people with those blood groups to donate as regularly as they can.
  • The overall demand for blood is falling by 3-4% per year due to improvements in clinical practice and our work with hospitals to ensure blood is used appropriately for patients.
  • We need nearly 250,000 new blood donors each year to replace those who stop donating and to ensure we have the right mix of blood groups to match patient needs in the future.
  • We urgently need 40,000 more black donors as they are more likely to have the blood type needed to treat the increasing number of patients suffering from Sickle Cell Disease.