Read powerful, real life stories about organ donation
New campaign launches with The Wait - a 14-hour film showing a day in the life of a patient waiting for an organ
Film to be screened free to public in its entirety at Vue Cinema Piccadilly on Friday 20th November
Almost 49,000 people in the UK have endured the wait for an organ transplant in the last 10 years and over 6,000, including 270 children, have died before receiving the transplant they desperately needed, new statistics reveal.
The figures released today by NHS Blood and Transplant (20/11/15) coincide with the launch of a new organ donation campaign ‘The Wait’ to highlight the true scale of the donor organ shortage.
Of the almost 7,000* patients currently on the UK’s transplant waiting list, 30% have been waiting more than two years. More than 500 of them have been waiting longer than five years – that’s over 1,800 days each.
The campaign launches with the screening of a 14-hour film capturing a day in the life of patient Simon Howell, 41, his wife Anita, also 41, and their children Sarah, 8, and James, 3. Born with a serious kidney condition, renal dysplasia, Simon had his first kidney transplant in 2005 thanks to his mum offering to be a living donor. Unfortunately, in 2009, the kidney failed. Simon was added to the transplant waiting list for a new kidney and has been waiting longer than six years already.
Simon allowed cameras to record the reality of just one of the many days he has spent waiting for a suitable organ to highlight just how difficult life is on the transplant waiting list.
Simon’s day is dominated by his illness. His day is punctuated with four life-saving sessions of dialysis, indescribable fatigue and constant uncertainty for the future as he and his family live in hope that a suitable donor organ will become available.
Talking about the impact of being on dialysis and waiting for a transplant, Simon said:
“I’ve been on dialysis for five years. For me, it’s the most difficult part of the wait. Dialysis keeps me alive whilst I wait for a transplant; but that’s all it does. I’m in limbo.
“My family and I are on a roller coaster and like a roller coaster, I can’t see the twists and turns or how it will end. But a transplant would completely transform my health and all our lives.
“Waiting for a transplant is not like waiting for anything else. You don’t necessarily get nearer to the top of the list the longer you’ve been on it. It depends on many factors including who is in greatest need and who is the best match for an organ. It’s an endless wait with no ETA.”
Across the UK on 1st October 2015 there were 6,856 people on the waiting list for a transplant, including:
Sally Johnson, NHS Blood and Transplant Director of Organ Donation and Transplantation said:
“Simon’s journey has already been a long and difficult one and while we are doing everything we can to make sure he gets the transplant he needs, the NHS cannot do this without help from other people.
“Sadly though, Simon is not alone. Statistically, more than one in ten people on the waiting list will die before they get the transplant they need. For some organs, the picture is significantly bleaker. More than one in four people waiting for lungs will die.
“I’d ask you to imagine how you’d feel if someone close to you was waiting for a transplant; their whole life on hold, hoping someone will donate to save them. I’m sure we’d all hope an organ would be available to help someone we love - so shouldn’t we all pledge to be organ donors so more lives can be saved?
“If you haven’t told those closest to you that you want to be an organ donor, then please do it today. Tell them you want to be an organ donor and record your decision on the NHS Organ Donor Register.”
To join the NHS Organ Donor Register please go to organdonation.nhs.uk or call 0300 123 23 23 – Now is the #TimeToSign.
NHS Blood and Transplant’s film ‘The Wait’ is being shown at Vue Piccadilly, London on Friday 20th November from 7.30am until 9.30pm. The public are invited to come along to watch some (or all) of Simon Howell’s day, captured on film. At 14 hours long, this promotional film to encourage more people to join the Organ Donor Register is an hour longer than the longest advertisement ever filmed**.
For more information, additional statistics, to arrange an interview or to request a case study please contact:
NHS Blood and Transplant press office 01923 367 600 or email firstname.lastname@example.org
For out of hours media enquiries please call 0117 969 2444
Organs@enginegroup.com / 020 3128 6339
How to support #TimeToSign:
Notes for Editors: