Hi there, we see you're using OS, why not try our app?
Download
Skip to main content

Ethan's story

Baby Ethan is urgently waiting for a heart transplant

8 January 2020
Ethan with his parents

 

Baby Ethan Eaves, 9 months old, is urgently waiting for a heart transplant. He has been waiting three times longer than the average adult urgent heart patient waits for a transplant. His dad, Richard, received a heart transplant in January 2019.

Ethan’s mother, Roselelia says: "It is mixed emotions because we know without a heart Ethan will die but then we know and understand another child will have die for Ethan to live. It's hard to comprehend it and we wouldn't wish anyone to be in this situation, but we are and are just trying to remain as positive as we can.

"We started off 2019 with my husband having had a heart transplant and never thought we'd be going through this again. As we are with Richard’s donor, we would forever be grateful to that family and words cannot even begin to explain how precious of a gift and life you have given someone.

"We are all signed up for organ donation even Ethan. We have already had those discussions that should Ethan not survive his journey, we take comfort knowing he would live on and save another’s life. We cannot accept something without considering doing it ourselves. Even when Richard’s old heart was taken out his valves were donated and saved others. Paying it forward is was we believe in.

"All I ask is you put yourselves in our shoes for one minute and think. Please just talk about it. Share your wishes. I pray that one day we can end the waiting list. We feel helpless and unable to do anything but what we can do is continue to raise awareness.

"We are living proof of the need for organ donation and what it can do. If my husband didn’t have his heart transplant, he may not have been here today to support me through a very difficult labour, raising Ethan, the girls and being with us every day, every step of the way."

We wake up every day hoping we get that call for Ethan. He is our world and all we want is for him to live.
Roselelia, Ethan's mother

 

Every day across the UK, someone dies waiting for an organ transplant.

The law around organ donation in England is changing to help more people pass on more organs to save and improve more lives like Ethan's.

You still have a choice if you want to be an organ donor when you die.

Whatever you decide, make sure you let your family and friends know.

Have you recorded your organ donation decision?

Make your choice