Organisations which support/promote organ and tissue donation
These links are provided for additional reference and information only and do not constitute any form of endorsement by NHSBT.
If you are aware of a site that might be of interest to users of this website please contact the webmaster with further details.
British Liver Trust
The Trust is the only national UK charity concerned with all forms of adult liver disease. The charity aims to inform, support and advise people who are concerned about or living with liver disease. This well-constructed website contains useful information on how the liver works, liver diseases, a news desk and message boards for both patients and nurses together with details of research funding. Several sections have been translated into other languages.
Centre for Evidence in Transplantation (CET)Visit Website
Established in 2005 to evaluate the quality of evidence available in solid organ transplantation and make the results available to the transplant community. It includes the Transplant Library, a centralised resource of trials, reviews, analyses and guidelines for the use of healthcare professionals.
Diabetes UKVisit Website
Diabetes UK is the leading charity working for people with diabetes. They fund research, campaign and help people to live with the condition.
Their mission is to improve the lives of people with diabetes and to work towards a future without diabetes.
About 1.4 million people in the UK have been diagnosed with diabetes. This number is set to double by 2010. Another million probably have the condition but don't know it.
Donor Family NetworkVisit Website
The Donor Family Network supports the families of organ and tissue donors and promotes organ and tissue donation.
Give2Live was set up in memory of Laura Hamilton, who having received two liver transplants as a toddler, died while waiting for a third transplant in 2007 just weeks before her 21 st birthday.
Laura’s parents decided to launch the organisation to raise awareness of organ donation and to encourage more people to join the NHS Organ Donor Register.
Kidney Research UKVisit Website
Kidney Research UK is the leading UK charity funding research that focuses on the prevention, treatment and management of kidney disease. It also dedicates its work to improving patient care and raising awareness of kidney disease.
Kids Kidney ResearchVisit Website
Kids Kidney Research was formed, as the KRAF, by a group of people who had friends and family with kidney disorders. Although they were all adults with kidney disease, they decided to support paediatric kidney research since many would not have been in the position they were in had their conditions been treated in childhood.
30 years on it is one of the leading paediatric charities supporting kidney and urological research, helping to find cures and improve remedial care.
Kidney Wales FoundationVisit Website
The Kidney Wales Foundation aims to promote improvements in the quality of, and access to, healthcare for kidney patients in Wales as well as raising awareness of the need for more donors.
Through its fundraising it has helped provide dialysis units and finance consultant nephrologists, nurse specialists, social workers and psychologists in hospitals across the whole of Wales. It also plays an important lobbying role for the renal service in Wales.
The Foundation played a lead role in the development of the 'Tell a Loved One' campaign, funded by the Welsh Assembly Government which saw nine major charities work together.
Legacy of LifeVisit Website
Legacy of Life was formed by Sue and Richard Cansdale after the death of their student daughter Zoë, in a road accident in 1998. Zoë subsequently became a tissue donor. Their aims are to make people aware of the breadth of transplantation and to spread the message that organ and tissue donation has benefits for donor families as well as recipients.
Live life then give lifeVisit Website
Intially launched as a campaign by two friends with Cystic Fibrosis, Live Life Then Give Life is now a registered UK Charity whose mission is to save and improve the lives of all those in need or receipt of organ and tissue transplants.
The charity works hard to improve education and awareness by giving talks, hosting events and utilising the Media, as well as funding projects that increase the numbers of successful transplants in the UK.
Liver4Life (L4L)Visit Website
Liver4Life (L4L) is a new and modern charity dedicated to supporting any person affected by a liver condition in the UK.
L4L offers support and education, as well as undertaking campaigns on behalf of people with a liver condition, to improve their care, their treatment and their support services.
L4L recognises the importance of preventing liver disease and the early detection of a liver condition, liver disease and liver cancer in the UK.
The Nicholas Green FoundationVisit Website
When seven year old Nicholas Green was shot on holiday in Italy in 1994, his parents Reg and Maggie donated his organs to help improve the lives of seven Italians. This led to a huge increase in Organ Donor Registrations. The Greens continue to campaign on behalf of organ donation and Reg Green has recently written a book in association with United Network for Organ Sharing (UNOS) where he talks to 42 people at different stages of organ transplant.
Transplant NewsVisit Website
Based in Washington DC USA, it is described as "the only independent, twice-monthly newsletter providing up-to-the-minute information on developments in organ, tissue, eye, bone marrow, and stem cell procurement and transplantation".
Transplant Sport UKVisit Website
Is a registered charity which aims to raise awareness of the need for organ donation in the UK and worldwide by staging sporting events in the UK, including the British Transplant Games, and a variety of other competitions including badminton, volleyball and golf. These demonstrate that people can have a full and active life after transplant, encouraging others to register on the Donor Register.